Integrating a quality of life assessment and practice support system in palliative home care
The results of this study will contribute much-needed knowledge about the use of electronic quality of life (QOL) assessments in palliative homecare nursing, with the ultimate goal of improving outcomes of care for seriously ill older adults and their family caregivers who are living at home.
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About the Project
Routine assessment of the perceived healthcare needs of older adults with advancing and life-limiting illnesses is necessary to ensure that patients' and family caregivers' concerns are visible to healthcare professionals, so that they can be effectively monitored and addressed.
These types of assessments involve asking people to respond to questions about their symptoms, their physical, psychological, social and existential/spiritual wellbeing, and their experiences with health care. Handheld electronic systems are increasingly used and recommended to facilitate such QOL assessments. However, it is often unclear how to best implement these systems to facilitate uptake in practice. In addition, there is a need for information about the potential of such systems to improve patient- and family-centered outcomes.
This project involves working with clinicians, patients and family caregivers and will address the aforementioned issues through the integration into practice and evaluation of an innovative electronic QOL Assessment and Practice Support System (QPSS) in palliative homecare nursing.
Richard Sawatzky, PhD, MSc, BSc, RN -- Trinity Western University
Robin Cohen, PhD, MSc, BSc -- Jewish General Hospital
Joan Bottorff, PhD -- University of British Columbia
Stirling Bryan, PhD -- University of British Columbia
Peter Dodek, MD, MHSc -- Providence Health Care
Anne Gadermann, PhD -- Providence Health Care
Gunn Grande, PhD -- University of Manchester
Joakim Öhlén, PhD -- Ersta Sköndal University College
Pamela Ratner, PhD, FCAHS, RN -- University of British Columbia
Sheryl Reimer Kirkham, PhD -- Trinity Western University
Kara Schick-Makaroff, PhD -- University of Alberta
Kelli Stajduhar, PhD, MSN, BN, RN -- University of Victoria
Herbert Tsang, PhD -- Trinity Western University
Knowledge Users and Partners:
Sharon Baxter, MSW -- Canadian Hospice Palliative Care Association
Christie Beveridge -- Fraser Health Authority
Shelly Cory, MA -- Canadian Virtual Hospice
Mary-Anne Johnson, MSW -- Fraser Health End-of-Life Care Program
Hermia Lee -- Fraser Health Authority
Barbara McLeod, RN -- Fraser Health End-of-Life Care Program
Carolyn Tayler, RN, BSN, MSA, CON(C) -- Fraser Health End-of-Life Care Program
James Voth -- Intogrey Research and Development
Jean Warneboldt, MD, CCFP -- Fraser Health End-of-Life Care Program
Project Contact: Richard Sawatzky -- firstname.lastname@example.org