Evaluation of a context‐adapted wiki‐based decision aid supporting critically ill patients’ decisions about life‐sustaining therapies
In this project, we will develop and deliver a training program to teach clinicians how to use the decision aid we created with frail elderly patients and their family members.
Possible Research Results
Anticipated findings: By training professionals to use our wiki-based decision aid, we aim to improve discussions with their patients about life-sustaining therapies, to increase decisions that respect patients’ values and to reduce decisional conflict.
Impact of findings: Our project will provide a clinical solution that is fully integrated into bedside care so that knowledge can have a direct impact on decision making. We aim to decrease patient suffering, family distress and complicated bereavement. Administrators and policy makers could benefit from this open-source knowledge translation model. The barriers and facilitators identified will help us create a strategy for scaling-up our wiki-based solution to other contexts, cultures and settings. Our intervention will help frail elderly patients and their caregivers make shared and informed decisions on life-sustaining care, based on their values and preferences.
About the Project
Most Canadians want to die at home avoiding life support. But recent studies show more frail elderly are being put on life support in their final days and are dying in hospital. Those who survive struggle with recovering. Decision aids help professionals discuss with their patients about the risks and benefits of treatment options and about their personal values and preferences.
We now need to train clinicians to use our decision aid (available at www.wikidecision.org) regularly. Once this is complete, we will then evaluate the impact of our training on the quality of patients' decisions by verifying if patients are making decisions that respect their values. We will also explore how our novel decision aid can be used elsewhere for the benefit of all Canadians.
For more details on the project rationale, hypothesis, objectives and research plan, click here.
Patrick Michel Archambault, MD, MSc, FRCPC -- Université Laval
France Légaré, MD, PhD, CCFP, FCFP -- Université Laval
Emmanuelle Bélanger, MSc, PhD -- Université de Montréal
Mark H. Ebell, MD, MS -- University of Georgia College of Public Health
Jennifer Kryworuchko, PhD, RN -- University of British Columbia
Patrick Plante, PhD -- TÉLUQ, Université du Québec et SAVIE
Louise Sauvé, PhD -- TÉLUQ, Université du Québec et SAVIE
Diane Tapp, Inf., PhD -- Université Laval
Alexis Turgeon, MD, MSc, FRCPC -- Université Laval
Knowledge Users and Partners:
Sarah Alameddine, PharD -- Center for Consumer Health Informatics Research/Nova Southeastern University
Christian Chabot -- Telus
Daniel Paré, MAdm -- CISSS de Chaudière-Appalaches
Tom van de Belt, PhD -- Radboud REshape Innovation
Project Contact: Patrick Michel Archambault -- firstname.lastname@example.org