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Technology and health care for the elderly medical research studies

Focus on strategic priorities that have significant social impact.

SIG 2014-IS

Improving Palliative Care in Long-Term Care Homes Using Participatory Action Research

The findings of this study have the potential to improve the quality of life of frail older adults in long-term care (LTC) and provide better support to their families. The proposed study promises to offer valuable information on implementation processes, clinical and administrative-tools, and educational materials that will inform how qualified health professionals and decision-makers can improve the delivery of palliative care in LTC globally.

Possible Research Results

Anticipated findingsGiven the growing aging population living and dying in this complex health environment, the proposed study promises to offer valuable information on implementation processes, clinical and administrative tools, and educational materials that will inform how qualified health professionals and decision-makers can improve the delivery of palliative care in LTC globally.

Impact of findingsImproving the delivery of palliative care across care settings has become a national priority, and LTC has been identified as one area in need of vast improvement (refer to Canadian Strategy on Palliative Care). The proposed project is a critical first step in providing LTC facilities across Canada with evidence-informed directions on programmatic features to be considered and implementation strategies to be adopted to improve care for this vulnerable population. This project aims to inform service providers and decisions-makers on the practices and processes that can improve the quality of life and death for frail marginalized older adults and their families. The findings of this study have the potential to improve the quality of life of frail older adults in LTC and provide better support to their families.

Publications, presentations and webinars

About the Project

There is a clear and pressing need for palliative care approaches suitable to this complex health care environment, given the growing prevalence of residents with palliative care needs in LTC.

To meet the project's objective a multiple case study design and participatory action research approach will be used to explore how the research methodology itself, and different elements of the program, impact implementation in four different Canadian LTC homes and how the combined elements of the program impact resident and family outcomes.

For more details on the project rationale, hypothesis and objectives, click here.

Project Team

Principal Investigators:

Sharon Kaasalainen, PhD, RN -- McMaster University

Tamara Sussman, PhD, MSW -- McGill University

Co-Investigators:

Noori Akhtar-Danesh, PhD -- McMaster University

Robin Bonifas, PhD, LICSW -- Arizona State University

Valérie Bourgeois-Guérin, PhD, OPQ -- Université du Québec à Montréal

Kevin Brazil, PhD -- Queen's University Belfast

Vanina dal Bello-Haas, PhD, MScPT -- McMaster University

Marie Earl, PhD, MScPT -- Dalhousie University

Mary Lou Kelley, PhD, MSW -- Lakehead University

Lynn McCleary, PhD, RN -- Brock University

Marg McKee, PhD, MA -- Lakehead University

Alexandra Papaioannou, MSc, MD -- McMaster University

Deborah Parker, PhD, RN -- University of Queensland

Jenny Ploeg, PhD, RN -- McMaster University

Shane Sinclair, PhD, CPCS -- University of Calgary

Patricia Strachan, PhD, RN -- McMaster University

Genevieve Thompson, PhD, RN -- University of Manitoba

Lorraine Venturato, PhD, RN -- University of Calgary

Abby Wickson-Griffiths, PhD, RN -- McMaster University

John You, MSc, MD -- McMaster University

Laurel Young, PhD, MTA -- Concordia University

Knowledge Users and Partners:

Allison Costello -- Ontario Ministry of Health and Long-Term Care

Donna Fairley -- Ontario Association of Residents' Councils

Robert Francis -- Ontario Ministry of Health and Long-Term Care

Lorraine Purdon -- Family Council's Program

Donna Rubin -- Ontario Association of Non-Profit Homes and Services for Seniors

Tim Siemens -- Tabor Manor

Project Contact: Sharon Kaasalainen -- kaasal@mcmaster.ca

SIG 2014-IS

Key words: palliative care; intervention; long-term care; evaluation; advance care planning