Improving Palliative Care in Long-Term Care Homes Using Participatory Action Research
The findings of this study have the potential to improve the quality of life of frail older adults in long-term care (LTC) and provide better support to their families. The proposed study promises to offer valuable information on implementation processes, clinical and administrative-tools, and educational materials that will inform how qualified health professionals and decision-makers can improve the delivery of palliative care in LTC globally.
Possible Research Results
Anticipated findings: Given the growing aging population living and dying in this complex health environment, the proposed study promises to offer valuable information on implementation processes, clinical and administrative tools, and educational materials that will inform how qualified health professionals and decision-makers can improve the delivery of palliative care in LTC globally.
Impact of findings: Improving the delivery of palliative care across care settings has become a national priority, and LTC has been identified as one area in need of vast improvement (refer to Canadian Strategy on Palliative Care). The proposed project is a critical first step in providing LTC facilities across Canada with evidence-informed directions on programmatic features to be considered and implementation strategies to be adopted to improve care for this vulnerable population. This project aims to inform service providers and decisions-makers on the practices and processes that can improve the quality of life and death for frail marginalized older adults and their families. The findings of this study have the potential to improve the quality of life of frail older adults in LTC and provide better support to their families.
Publications, presentations and webinars
About the Project
There is a clear and pressing need for palliative care approaches suitable to this complex health care environment, given the growing prevalence of residents with palliative care needs in LTC.
To meet the project's objective a multiple case study design and participatory action research approach will be used to explore how the research methodology itself, and different elements of the program, impact implementation in four different Canadian LTC homes and how the combined elements of the program impact resident and family outcomes.
For more details on the project rationale, hypothesis and objectives, click here.
Sharon Kaasalainen, PhD, RN -- McMaster University
Tamara Sussman, PhD, MSW -- McGill University
Noori Akhtar-Danesh, PhD -- McMaster University
Robin Bonifas, PhD, LICSW -- Arizona State University
Valérie Bourgeois-Guérin, PhD, OPQ -- Université du Québec à Montréal
Kevin Brazil, PhD -- Queen's University Belfast
Vanina dal Bello-Haas, PhD, MScPT -- McMaster University
Marie Earl, PhD, MScPT -- Dalhousie University
Mary Lou Kelley, PhD, MSW -- Lakehead University
Lynn McCleary, PhD, RN -- Brock University
Marg McKee, PhD, MA -- Lakehead University
Alexandra Papaioannou, MSc, MD -- McMaster University
Deborah Parker, PhD, RN -- University of Queensland
Jenny Ploeg, PhD, RN -- McMaster University
Shane Sinclair, PhD, CPCS -- University of Calgary
Patricia Strachan, PhD, RN -- McMaster University
Genevieve Thompson, PhD, RN -- University of Manitoba
Lorraine Venturato, PhD, RN -- University of Calgary
Abby Wickson-Griffiths, PhD, RN -- McMaster University
John You, MSc, MD -- McMaster University
Laurel Young, PhD, MTA -- Concordia University
Knowledge Users and Partners:
Allison Costello -- Ontario Ministry of Health and Long-Term Care
Donna Fairley -- Ontario Association of Residents' Councils
Robert Francis -- Ontario Ministry of Health and Long-Term Care
Lorraine Purdon -- Family Council's Program
Donna Rubin -- Ontario Association of Non-Profit Homes and Services for Seniors
Tim Siemens -- Tabor Manor
Project Contact: Sharon Kaasalainen -- firstname.lastname@example.org
Key words: palliative care; intervention; long-term care; evaluation; advance care planning