Improving advance care planning for frail elderly Canadians
Preeminent members of the Canadian health research community and a broad range of community and clinical stakeholders, including patients and families, have deemed that narrowing the gap between the care that patients prefer and what they actually receive is a pressing national priority. Our vision is for frail elderly Canadians to receive person-centered, goal-consistent care as they near the end of life (EOL).
Possible Research Results
Anticipated impact of findings: The experienced team of 32 investigators from 16 universities, five international collaborators, 42 partner organizations and a growing team of patient advisors will focus on increasing uptake, impact and access to Advance Care Planning (ACP) for frail elderly Canadians across the primary care, long-term care (LTC), and hospital settings. This will be achieved by tailoring, implementing, and evaluating a multi-faceted suite of ACP tools in these care settings, while paying particular attention to the needs of marginalized groups (i.e. ethnic and gender minority groups). Our work is guided by the Knowledge-to-Action Framework, with a focus on decreasing patient, family and clinician barriers to ACP so that our tools will be positioned for broad uptake across Canada.
About the Project
Advance care planning (ACP) is a process that supports people in understanding and sharing their personal values, life goals and preferences related to future medical care. The goal of ACP is to prepare people, and their substitute decision-maker(s), for future “in-the-moment” treatment decisions so that people get medical care that is consistent with their values, goals and preferences during serious illness. ACP can improve the patient experience, align treatment with patient preferences, avoid unwanted and costly invasive treatments near EOL and improve psychological outcomes for family members during bereavement.
For this project, our experienced team of 32 clinicians and researchers will focus on increasing uptake, impact and access to ACP for frail elderly Canadians across the primary care, long-term care (LTC) and hospital settings. We will achieve this by tailoring, implementing and evaluating a multi-faceted suite of ACP tools in these care settings, while paying particular attention to the needs of marginalized groups.
For more details on the project rationale, research plan, objectives and deliverables, click here.
John You, MD, MSc, FRCPC -- McMaster University
Doris Barwich, MD, CCFP -- University of British Columbia
Gloria Gutman, PhD, FCAHS, OBC, LLD(Hon.) -- Simon Fraser University
Michelle Howard, PhD, MSc -- McMaster University
Dev Jayaraman, PhD, FCAHS, OBC, LLD(Hon.) -- The Research Institute of the McGill University Health Centre
Sharon Kaasalainen, RN, BScN, MSc, PhD -- McMaster University
Doug Klein, MD, MSc, BSc, CCFP(PC) -- University of Alberta
Daniel Kobewka, MD, MSc -- Ottawa Hospital Research Institute
Jessica Simon, MBChB, FRCPC -- University of Calgary
Tamara Sussman, MSW, PhD -- McGill University
Robin Urquhart, PhD -- Dalhousie University
Julia Abelson, PhD -- McMaster University
Peter Allatt, MHSc -- Bridgepoint Health
Carrie Bernard, MD -- McMaster University
Valérie Bourgeois-Guérin, PhD -- Université du Québec à Montréal
Andrew Day, PhD -- Queen's University
Brian de Vries, PhD -- Simon Fraser University
Peter Dodek, MD, MHSC -- University of British Columbia
James Downar, BHSc, MHSc, MDCM -- University of Toronto
Robert Fowler, MDCM -- Sunnybrook Research Institute
Paulette Hunter, PhD -- University of Saskatchewan
Jennifer Kryworuchko, PhD, RN, CNCC(C) -- University of British Columbia
Irene Ma, PhD -- University of Calgary
Lynn McCleary, PhD -- Brock University
Jeff Myers, MD, MSEd, CCFP -- Sunnybrook Hospital
Aman Nijjar, MD -- University of British Columbia
Nishan Sharma, PhD -- University of Calgary
Taz Sinuff, MD, PhD, FRCPC -- Sunnybrook Research Institute
Marissa Slaven, MD -- McMaster University
Amy Tan, MD, MSc, CCFP(PC) -- University of Alberta
Ravi Taneja, MD, FRCPC -- London Health Sciences
Genevieve Thompson, PhD -- University of Manitoba
Project Contact: Dr. John You -- firstname.lastname@example.org