Support, Education, Networking & Sustained Engagement (SENSE): Knowledge-to-Action with Families of the Frail Elderly Living in Residential Long-term Care
This pilot study aimed to conduct a knowledge-to-action project by co-creating a workshop series with families that provides education, peer support and networking.
Possible Research Results
Impact of findings: This study can lead to insights into how to best engage with families through KTA research. This study is directly relevant to TVN’s strategic priority to “empower, engage and support patients and their families/caregivers” as we will develop strategies that support engagement and equip family members to communicate more effectively with healthcare providers at their relative’s RLTC facility. With a growing contribution to care by family members of the frail elderly in RLTC in the coming decades, policies and programs that empower families and foster authentic care partnerships between families and care providers need to be developed. The workshop content will be transferable to other RLTC settings while the findings could be integrated into ongoing policies and practices around family inclusion in this sector. In conclusion, families have voiced a wish to be engaged and included when caring for residents. We believe the co-creation and implementation of the SENSE Workshops, will contribute to enhance existing support currently provided to them and consequently improve care of older adults living in RLTC facilities.
About the Project
Over 250,000 Canadians live in residential long-term care (RLTC). By 2038, families of residents will be giving over 107 million hours of care each year. In general, the role of families and friends in this setting has been unclear. They have been thought of as visitors, mainly providing social and emotional support. Yet our research suggests their role is changing. This is due to growing frailty and medical needs of residents, without an increase in staffing support. Family members and friends are becoming more involved in day-to-day and ‘hands-on’ care for their relative. They also play a larger role in the lives of other residents. Highly involved family members on-site expressed a desire to better understand the needs of all residents, particularly those with dementia.
The research plan employed multiple methods (e.g., participant observations, surveys, focus groups) to address the research questions and assessed (1) the KTA process and (2) family members’ inclusion and optimal involvement before and after the SENSE Workshop Series.
Jennifer Baumbusch, RN, PhD, MSN, BSN — University of British Columbia
Elisabeth Drance, MD — University of British Columbia
Deborah O’Connor, RSW, PhD — University of British Columbia
Alison Phinney, RN, PhD — University of British Columbia
Colin Reid, PhD — University of British Columbia
Patricia Rodney, RN, PhD — University of British Columbia
Jo Ann Tait, MScN, BHSc, RPN — University of British Columbia
Catherine Ward-Griffin, RN, PhD — Western University
Knowledge Users and Partners:
Project Contact: Jennifer Baumbusch — firstname.lastname@example.org
Rationale: Highly involved family members have voiced a need for education, peer support and networking. Others, who are not frequently on-site expressed a desire to better understand the needs of all residents, particularly those with dementia. However, to date, little research has looked at the inclusion of families in RLTC.
Objectives: (1) To identify key areas for education, peer support and networking for families, (2) to develop, implement, and evaluate Support, Education, Networking & Sustained Engagement (SENSE) workshops and (3) to assess the impact of SENSE workshops on a) knowledge about issues in RLTC (e.g. dementia; aggression; end-of-life care) and b) sense of involvement in their relative’s RLTC facility.
Research Plan: The research plan employs multiple methods (e.g., participant observations, surveys, focus groups) to address the research questions and will assess (1) the KTA process and (2) family members’ inclusion and optimal involvement before and after the SENSE Workshop Series.
CFN Webinar (November 13, 2019): Making SENSE with Families in Long-term Care: A Knowledge-to-Action Study